© 2019 Congenital Heart Defects Families Association. All rights reserved

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Kansas City area support group.

The 2017 Support group meetings run from 7:00 pm to 8:30 pm at Downtown Children’s Mercy Hospital on their scheduled dates.

 

Most meetings are in the Kraemer Library.  After entering security, stay on the first floor toward the cafeteria.  The LIbrary is in the same hallway. 

Care Packages

If your child is inpatient, or has an upcoming heart surgery at ​Children's Mercy Hospital in Kansas City, you can request a care package from CHD Families. We do our best to honor each request.

 

Care package boxes are designated by gender and age. They include basic toiletries, a blanket, a small stuffed animal, a meal card to Children's Mercy, and information about the group and CHD's. Other items may be included as available.

 

Please fill out this form:  care package request form.

 

If you have any questions, please e-mail us at: info@chdfamilies.org

Congenital Heart Defects Families Inpatient Fund

Congenital Heart Defects Families Inpatient Fund

This fund is in place to assist families whose child has a congenital heart defect and is being treated at Children’s Mercy. The founding donor to this fund is the Congenital Heart Defects Families Association (CHDFA). CHDFA reserves the right to modify the fund’s restrictions in the future if needed with the consent of Children’s Mercy Hospital. 

 

Some of the uses of the CHD Families Support Fund include: medical equipment and supplies for home use, adaptive strollers, cribs, assistance with funeral expenses and transportation costs for travel to other centers of excellence. Uses may also include bus, taxi, or plane fares; gasoline cards, food, lodging, long distance phone calls, and special food products required for a child’s treatment following the general guidelines of the CMH Family Support Fund for these items.

 

To learn more about the Congenital Heart Defects Families Inpatient Fund, families can contact the Children’s Mercy Cardiology Social Workers through the Department of Social Work at (816) 234-3670.